Publication:
Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents

dc.contributor.authorTenorio, Marcela
dc.contributor.authorSagner-Tapia, Johanna
dc.contributor.authorGaribaldi, Renata
dc.contributor.authorTotsika, Vaso
dc.date.accessioned2026-09-11T14:30:13Z
dc.date.available2026-09-11T14:30:13Z
dc.date.issued2025
dc.description.abstractThe communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal experiences with receiving a Down syndrome diagnosis. A total of 40 mothers participated, 42.5% received a prenatal diagnosis, 17.5% received the diagnosis during labor and delivery, and 40% received the information at the early postnatal period. Through reflexive thematic analysis, four key themes emerged: (1) About Who and How the News Was Delivered (2), About When the News Was Delivered (3), On Where the News Should Be Delivered (4), parents’ positive experiences emerging from this, predominantly, negative episode. Our findings emphasize the need for improved training for healthcare professionals in delivering sensitive diagnoses, with an emphasis on empathy, accurate information, and support resources for families.
dc.description.versionVersión publicadda
dc.format.extent11 p.
dc.identifier.citationTenorio D, M., Sagner-Tapia, J., Garibaldi, R. et al. Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents. BMC Pregnancy Childbirth 25, 536 (2025). https://doi.org/10.1186/s12884-025-07665-2
dc.identifier.doihttps://doi.org/10.1186/s12884-025-07665-2
dc.identifier.urihttps://hdl.handle.net/11447/11118
dc.language.isoen
dc.rightsAtribución-NoComercial-CompartirIgual 3.0 Chile (CC BY-NC-SA 3.0 CL)
dc.rights.urihttp://creativecommons.org/licenses/by-nc-sa/3.0/cl/
dc.subjectDown syndrome diagnosis
dc.subjectMaternal experience
dc.subjectHealthcare communication
dc.subjectPrenatal diagnosis
dc.subjectEmpathy
dc.subjectSupport
dc.titleYour baby has down syndrome: a reflexive thematic analysis of breaking the news to parents
dc.typeArticle
dcterms.accessRightsAcceso abierto
dcterms.sourceBMC Pregnancy and Childbirth
dspace.entity.typePublication

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