Person: Cabieses, Báltica
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Publication Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study(2025) Cabieses, Báltica; Obach, Alexandra; Roberts, Antonia; Repetto, GabrielaBackground Rare diseases are conditions that have a low prevalence in the population and a high disease burden and are often chronic and progressive. International evidence concerning the experience of people and families living with rare diseases is scarce, leading to late and erroneous diagnoses, as well as non-specific treatments. This study explored the therapeutic trajectories of people and families living with rare diseases within Chile’s public and private healthcare systems from the perspective of patients, caregivers, and medical teams, including the initial symptoms, first consultation, testing, diagnosis, treatment, and follow-up. Methods A qualitative exploratory study was conducted through multiple case studies. Sixty participants were interviewed in person and/or virtually: patients (n = 16), caregivers (n = 22), healthcare workers (n = 20), and two patient organisation leaders. The material was analysed using thematic analysis. The project was approved by the Scientific Ethics Committee of Facultad de Medicina Clínica Alemana, Universidad del Desarrollo. Results After similar initial symptoms and first consultation, three main types of trajectories were identified: (i) the path taken by those who reach a diagnosis for a disease that has specific treatment available; (ii) the journey of those who reach a diagnosis for their health condition, but their disease does not have a specific treatment available; and (iii) the trajectory of those who have not reached a diagnosis and receive symptomatic treatments for symptoms. Conclusions The therapeutic trajectories of patients with rare symptoms are similar in terms of initial symptoms and first consultation. However, their paths diverge at the diagnostic stage, with diverse experiences related to these journeys, largely based on having a diagnosis and whether there is a specific treatment. Rare conditions in Chile requires further attention and urgent action that considers those who live with them and their families.Publication Exploring the characteristics of cancer-centred civil society organisations in Chile: A qualitative study(2025) Roberts, Antonia; Vezzani, Francisca; Cabieses, Báltica; Obach, Alexandra; Campaña, Carla; Espinoza, ManuelBackground: In Chile, civil society organisations in health have been historically active in population health and specifically in cancer; they have had an important role in addressing patients' and families' necessities. Although they occupy a central role, there is no clarity about who they are, how they are organised, the goals that guide their performance and how they materialize social participation in health. Based on that, this study aimed to explore the characteristics of civil society organisations that work in cancer in Chile and to identify the networks they build with other actors to achieve their goals. Materials and methods: Qualitative case study using semi-structured online interviews with organisation representatives, politicians, decision-makers and academics related to cancer in Chile. Content analysis was performed, admitting emerging categories from the participants' narratives. Results: Three main profiles of organisations were identified: (i) Long-established organisations focused on influencing public policy and decision-making in cancer, (ii) Growing organisations focused on informing and supporting families and patients, (iii) Newly established organisations focused on patient well-being, such as sports activities. Relationships between groups and other actors involve perceived benefits like the growth of the organisations and funding for activities. However, perceived barriers and inequities are also identified, mainly lack of financial resources, competition between organisations and insufficient information. Discussion: The objectives of civil society organisations in cancer are diverse and reflect multiple ways of practising social participation in health. Tensions generate unequal participation and missed opportunities to promote public health in cancer in Chile. The study highlights the importance of recognising cancer social organisations as essential actors in public health. It is crucial to involve them in formulating and implementing comprehensive responses to maximise the opportunities for progress in this field.Publication Global health education programs: Are we embedding contemporary global health needs into the curriculum of master's programs?(2026) Singh, Samraj; Roberts, Antonia; Cabieses, Báltica; Mezones, Edward; Al-Kassab, Ali; Espinoza, ManuelIntroduction: Global health education (GHE) is expected to prepare professionals to address complex, interlinked global challenges. However, current GHE structures often reflect persistent power asymmetries between the Global North and South, limiting the development of a truly global and equitable health workforce. This review examines how global health master's programs are distributed geographically and to what extent their thematic focus and core curricular content reflect current global health priorities, particularly those related to equity and social justice. Methods: A mapping review of 86 graduate-level GHE programs worldwide was conducted to examine their geographic distribution, thematic focus, and curricular content. Programs were categorized by region and analyzed for thematic emphasis and pedagogical approaches, based on publicly available information on modules and learning activities. Results: The review found that 84% of GHE programs are offered by institutions in the Global North. Programs in the Global South are fewer but tend to emphasize environmental health, governance, and community engagement, often incorporating experiential learning. Across all regions, key topics such as health systems, global health challenges, sustainability, law, ethics, and human rights are unevenly integrated. This variability risks producing graduates with inconsistent competencies to address global health priorities. The dominance of Global North institutions in GHE reflects broader structural inequities in global health. While emerging North-South and South-South collaborations and field-based learning suggest a shift toward more reciprocal models, many programs lack clearly defined aims and accountability frameworks. Discussion: To advance GHE, curricula must embed equity, interdisciplinarity, and regional relevance. Explicit learning outcomes should include power analysis and partnership-building, co-designed and co-delivered with institutions and communities from both the Global North and South. Such reforms are essential to cultivate a workforce capable of addressing global health challenges with contextual sensitivity and systemic insight.