Publication: Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study
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11 p.
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Acceso abierto
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Abstract
Background Rare diseases are conditions that have a low prevalence in the population and a high disease burden and are often chronic and progressive. International evidence concerning the experience o...
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Citation
Cabieses, B., Obach, A., Roberts, A. et al. Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study. Orphanet J Rare Dis 20, 86 (2025). https://doi.org/10.1186/s13023-025-03595-6
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