Access to diagnostic and therapeutic facilities for psychogenic nonepileptic seizures: An international survey by the ILAE PNES Task Force

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dc.contributor.authorHingray, Coraline
dc.contributor.authorEl-Hage, Wissam
dc.contributor.authorDuncan, Rod
dc.contributor.authorGigineishvili, David
dc.contributor.authorKanemoto, Kousuke
dc.contributor.authorLaFrance Jr., W. Curt
dc.contributor.authorMarinis, Alejandro de
dc.contributor.authorPaul, Ravi
dc.contributor.authorPretorius, Chrisma
dc.contributor.authorTellez-Zenteno, José F.
dc.contributor.authorWiseman, Hannah
dc.contributor.authorReuber, Markus
dc.date.accessioned2022-04-29T16:23:24Z
dc.date.available2022-04-29T16:23:24Z
dc.date.issued2018
dc.description.abstractObjective: Studies from a small number of countries suggest that patients with psychogenic nonepileptic seizures (PNES) have limited access to diagnostic and treatment services. The PNES Task Force of the International League Against Epilepsy (ILAE) carried out 2 surveys to explore the diagnosis and treatment of PNES around the world. Methods: A short survey (8 questions) was sent to all 114 chapters of the ILAE. A longer survey (36 questions) was completed by healthcare professionals who see patients with seizures. Questions were separated into 5 sections: professional role, diagnostic methods, management, etiology, and access to health care. Results: Responses were received from 63 different countries. The short survey was completed by 48 ILAE chapters, and the long survey by 1098 health profes- sionals from 28 countries. PNES were recognized as a diagnostic and therapeutic problem in all countries. Trauma and mental health issues were most commonly recognized as etiologic factors. There was a clear relationship between income and access to diagnostic tests and expertise. Psychological therapy was most com- monly considered the treatment of choice. Although financial difficulties were the most commonly reported problem with service access in low-income countries, in all countries stigma, lack of popular awareness, and lack of information posed challenges. Significance: This global provider survey demonstrates that PNES are a health problem around the world. Health care for PNES could be improved with better education of healthcare professionals, the development of reliable and simple diagnostic procedures that do not rely on costly tests, and the provision of acces- sible information.es
dc.description.versionVersión Publicadaes
dc.identifier.citationHingray C, El-Hage W, Duncan R, Gigineishvili D, Kanemoto K, LaFrance WC Jr, de Marinis A, Paul R, Pretorius C, Téllez-Zenteno JF, Wiseman H, Reuber M. Access to diagnostic and therapeutic facilities for psychogenic nonepileptic seizures: An international survey by the ILAE PNES Task Force. Epilepsia. 2018 Jan;59(1):203-214. doi: 10.1111/epi.13952.es
dc.identifier.urihttps://doi.org/10.1111/epi.13952es
dc.identifier.urihttp://hdl.handle.net/11447/6034
dc.language.isoenes
dc.subjectDiagnostic methodses
dc.subjectDissociationes
dc.subjectPsychogenic nonepileptic seizureses
dc.subjectPsychopathologyes
dc.subjectTherapeutic strategieses
dc.titleAccess to diagnostic and therapeutic facilities for psychogenic nonepileptic seizures: An international survey by the ILAE PNES Task Forcees
dc.typeArticlees
dcterms.sourceEpilepsiaes

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