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Gaps in clinical research in frontotemporal dementia: A call for diversity and disparities-focused research

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dc.contributor.authorFranzen, Sanne
dc.contributor.authorNuytemans, Karen
dc.contributor.authorBourdage, Renelle
dc.contributor.authorCaramelli, Paulo
dc.contributor.authorEllajosyula, Ratnavalli
dc.contributor.authorFinger, Elizabeth
dc.contributor.authorIllán-Gala, Ignacio
dc.contributor.authorLoi, Samantha M.
dc.contributor.authorMorhardt, Darby
dc.contributor.authorPijnenburg, Yolande
dc.contributor.authorRascovsky, Katya
dc.contributor.authorWilliams, Monique M.
dc.contributor.authorYokoyama, Jennifer S.
dc.contributor.authorAlladi, Suvarna
dc.contributor.authorAyhan, Yavuz
dc.contributor.authorBroce, Iris
dc.contributor.authorCastro-Suarez, Sheila
dc.contributor.authorColeman, Kristy
dc.contributor.authorCruz de Souza, Leonardo
dc.contributor.authorDacks, Penny A.
dc.contributor.authorBoer, Sterr C. M. de
dc.contributor.authorLeon, Jessica de
dc.contributor.authorDodge, Shana
dc.contributor.authorGrasso, Stephanie
dc.contributor.authorGupta, Veer
dc.contributor.authorGupta, Vivek
dc.contributor.authorGhoshal, Nupur
dc.contributor.authorKamath, Vidyulata
dc.contributor.authorKumfor, Fiona
dc.contributor.authorMatias-Guiu, Jordi A.
dc.contributor.authorNarme, Pauline
dc.contributor.authorNielsen, Rune
dc.contributor.authorOkhuevbie, Daniel
dc.contributor.authorPiña-Escudero, Stefanie D.
dc.contributor.authorRuiz Garcia, Ramiro
dc.contributor.authorScarioni, Marta
dc.contributor.authorSlachevsky Chonchol, Andrea
dc.contributor.authorSuarez-Gonzalez, Aida
dc.contributor.authorLead Tee, Boon
dc.contributor.authorTsoy, Elena
dc.contributor.authorUlugut, Hülya
dc.contributor.authorBabulal, Ganesh M.
dc.contributor.authorOnyike, Chiadi U.
dc.date.accessioned2024-06-06T14:18:50Z
dc.date.available2024-06-06T14:18:50Z
dc.date.issued2023
dc.description.abstractFrontotemporal dementia (FTD) is one of the leading causes of dementia before age 65 and often manifests as abnormal behavior (in behavioral variant FTD) or language impairment (in primary progressive aphasia). FTD's exact clinical presentation varies by culture, language, education, social norms, and other socioeconomic factors; current research and clinical practice, however, is mainly based on studies conducted in North America and Western Europe. Changes in diagnostic criteria and procedures as well as new or adapted cognitive tests are likely needed to take into consideration global diversity. This perspective paper by two professional interest areas of the Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment examines how increasing global diversity impacts the clinical presentation, screening, assessment, and diagnosis of FTD and its treatment and care. It subsequently provides recommendations to address immediate needs to advance global FTD research and clinical practice.
dc.description.versionVersión publicada
dc.format.extent20 p.
dc.identifier.citationFranzen S, Nuytemans K, Bourdage R, Caramelli P, Ellajosyula R, Finger E, Illán-Gala I, Loi SM, Morhardt D, Pijnenburg Y, Rascovsky K, Williams MM, Yokoyama JS, Alladi S, Ayhan Y, Broce I, Castro-Suarez S, Coleman K, de Souza LC, Dacks PA, de Boer SCM, de Leon J, Dodge S, Grasso S, Gupta V, Gupta V, Ghoshal N, Kamath V, Kumfor F, Matias-Guiu JA, Narme P, Nielsen TR, Okhuevbie D, Piña-Escudero SD, Garcia RR, Scarioni M, Slachevsky A, Suarez-Gonzalez A, Tee BL, Tsoy E, Ulugut H, Babulal GM, Onyike CU; ISTAART FTD PIA and ISTAART Diversity and Disparities PIA. Gaps in clinical research in frontotemporal dementia: A call for diversity and disparities-focused research. Alzheimers Dement. 2023 Dec;19(12):5817-5836. doi: 10.1002/alz.13129.
dc.identifier.doihttps://doi.org/10.1002/alz.13129
dc.identifier.urihttps://hdl.handle.net/11447/9055
dc.language.isoen
dc.rightsAtribución-NoComercial-CompartirIgual 3.0 Chile (CC BY-NC-SA 3.0 CL)
dc.rights.urihttp://creativecommons.org/licenses/by-nc-sa/3.0/cl/
dc.subjectCultural diversity
dc.subjectDiagnosis
dc.subjectEthnicity
dc.subjectFrontotemporal dementia
dc.subjectLanguage
dc.subjectLiteracy
dc.subjectNeuropsycho logical tests
dc.subjectPrimary progressive aphasia
dc.titleGaps in clinical research in frontotemporal dementia: A call for diversity and disparities-focused research
dc.typeArticle
dcterms.accessRightsAcceso abierto
dcterms.sourceAlzheimer’s & Dementia
dspace.entity.typePublication
relation.isAuthorOfPublicatione25c3d3e-63b5-4e04-951a-12a4989aa772
relation.isAuthorOfPublication.latestForDiscoverye25c3d3e-63b5-4e04-951a-12a4989aa772

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