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Reducing disparities in timely autism diagnosis through family navigation: results from a randomized pilot trial

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dc.contributor.author Feinberg, Emily
dc.contributor.author Abufhele, Marcela
dc.contributor.author Sandler, Jenna
dc.contributor.author Augustyn, Marilyn
dc.contributor.author Cabral, Howard
dc.contributor.author Chen, Ning
dc.contributor.author Diaz, Yaminette
dc.contributor.author Cesar, Zhandra
dc.contributor.author Aebi, Megan
dc.contributor.author Silverstein, Michael
dc.date.accessioned 2017-05-16T13:52:27Z
dc.date.available 2017-05-16T13:52:27Z
dc.date.issued 2016
dc.identifier.citation Psychiatr Serv. 2016 Aug 1;67(8):912-5
dc.identifier.uri http://hdl.handle.net/11447/1257
dc.identifier.uri http://dx.doi.org/10.1176/appi.ps.201500162
dc.description.abstract OBJECTIVE: Emerging evidence suggests that autism spectrum disorder (ASD) can be diagnosed by age 18 months and that early intensive behavioral intervention positively affects ASD core deficits. This pilot randomized controlled trial examined the feasibility of using an adapted form of patient navigation, Family Navigation (FN), to improve timely diagnosis of ASD in low-income families from racial-ethnic minority groups. METHODS: Forty children referred for an ASD diagnostic assessment were randomly allocated to receive FN or usual care. The primary outcome, time to diagnostic resolution, was assessed with survival analysis. RESULTS: Nineteen of 20 FN children completed the diagnostic assessment, compared with 11 of 19 children receiving usual care (hazard ratio=3.21, 95% confidence interval=1.47-6.98, p<.01). In regard to engagement of participants, 17 of 20 families (85%) met with the navigator for the targeted three in-person visits (median=4, range 1-9). CONCLUSIONS: FN may be a promising intervention to address barriers that impede timely ASD diagnosis.
dc.format.extent 4
dc.language.iso en_US
dc.publisher American Psychiatric Association
dc.subject autism spectrum disorder
dc.subject diagnosis
dc.subject Family Navigation
dc.subject low-income
dc.title Reducing disparities in timely autism diagnosis through family navigation: results from a randomized pilot trial
dc.type Artículo


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